A community festival in Lowestoft has raised more than £1,500 to support people living with Ataxia.
The Bands of Hope and Glory event featured live music, stalls, activities, and displays, drawing large crowds for a day of fun and fundraising. In total, £1,536.12 was collected for Ataxia UK, the national charity supporting those with the rare neurological condition.
Friedreich’s Ataxia, one of the most common inherited forms, affects coordination and balance, often leading to progressive mobility difficulties. A local campaigner and chair of Kirkley People’s Forum, who lives with the condition, shared how the charity has supported their family over many years. Both of their siblings also lived with Friedreich’s Ataxia, and Ataxia UK provided help throughout their lives.
They said: “I started showing symptoms in my twenties and now use a wheelchair full time. Ataxia UK has always been there for us. It’s encouraging that new treatments are on the horizon, and one day I’m sure they’ll be available to everyone.”
Ataxia UK is currently working with researchers, drug companies and funders to accelerate access to a new treatment that could slow progression of Friedreich’s Ataxia.
Organisers Kimble, Matt and Connor thanked everyone who attended and donated, saying the success of the event was down to the generosity of the local community.
The charity continues to raise awareness of Ataxia and support those living with the condition through research, advocacy and practical advice.
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